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June newsletter




Summer has finally arrived. Here are a few tips for warriors to stay healthy during the summer months.

*Stay hydrated drink plenty of water

* Wear sunscreen and avoid outside on the sweltering hot days.

* Dress warm for air-conditioned facilities.

* Don't overexert yourself during activities or exercise.

*Keep a positive attitude



 

June was a wonderful month of celebration in honor of World Sickle Cell Day. Thank you to everyone who participated in our exciting and educational events.



After hosting 2 successful drives this school year, Burgard High School earned a $250 Scholarship from the American Red Cross of WNY to use for a student headed off to a higher education program. We are extremely proud of our student volunteers, and we look forward to future blood drives and scholarship dollar earning opportunities.








 

World Sickle Cell Day events was a success.

 

The month of June was full of events that shined the light on Sickle Cell disease. These events included the Juneteenth parade March, The buffalo Bisons game, a blood drive, an educational webinar with Vertex and more... We would like to thank everyone who volunteered their time and supported these events. And to our warriors, families and supporters, for showing their commitment to our organizations mission.



 

We would like to give a special thanks to Nurse Practitioner Farah Gaillard, from Vertex pharmaceuticals for delivering such a wonderful and educational presentation for u during our Support group virtual educational webinar. We hope that are families were able to learn a lot from this experience. For more information on vertex pharmaceuticals treatment initiatives please visit their site (link posted on our page).



 


SCWB at Roswell clinic day.


Sickle Cell clinic day at Roswell park- The purpose of this event is to engage our youth and their families. This event will only be open for those who have clinic on this day. Thank you to Emily Capron, Certified Child Life Specialist for helping put this event together.


July 10th, 2024

10 am-11:30 am

Activities will include:

Lava Lamps scientific experiment

Build a Buddy the blood drop

Meet and greet Buddy the blood drop

See you all soon :).























 


6th Annual Sickle Cell Walk for education.

Please join us for our 6th Annual Sickle Cell Walk for education. This will be one for the books!!!

Registration is open and T-shirts are on sale now until August 31st, pictures of shirt will be available soon.




Thank you to our supporters and sponsors for helping us to continue this annual fundraising event and help honor National Sickle Cell awareness month.

What to expect this year?!

Walk/run for education

Children's games and activities

Bounce houses

Face painting

360 booths

And much more....

If you would like to be a vendor, sponsor or simply donate to our cause, please feel free to send us a message!



 


Tickets are on sale now for the Sickle Cell sneaker ball.


-Adult tickets are $35, Kids under 14- $20


- Each warrior who would like to receive a sneaker ball plaque will need to contact us asap, thank you!


- Sponsorship calendars are due by July 30th, 2024. Thank you to all of our participants and sponsors!


Thank you to our sponsors Vertex pharmaceuticals for their generous contribution of $2500 to help support the event and Wegman's market for donating $250 to help feed our families at the Ball. We are truly grateful for your support.



"The first thing to do as a caregiver for a child or loved one with SCD is to educate yourself on the disease.".... -Unknown

 

Best wishes, SCWB.

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